Personal Stories of Triumph, Pain and Everything In-between…

dementia

I should have been posting articles; it has been a long time since I have. It almost seems that even though I quit my job, I am busier than ever and to walk upstairs to my office is too much. Ridiculous I know. My emotions are like a roller coaster, and sometime I feel like I am bi-polar.

As my husband slips deeper into his illness there are limited things he can do. He is having a very hard time walking so he is immobile. We have a routine; he usually sleeps late and when the CNA comes we wake him up, and I help her take him to the shower. With the help of both of us, we can get him into the shower; I have bought handles, so he can grab on and feel safe when he is stepping in but he is still full of fear that he is going  to fall. It is quite an ordeal to get him to sit in the shower chair – once in a while he will refuse but most of the times we get him to sit.

Once he is showered shaved and cleaned up, he is helped into the front room/ kitchen area eats takes his medicine, and if I am lucky, he will take Bi-polarit without incidence sometimes he starts chewing getting confused about the difference between swallowing and chewing.  I feed him if he just doesn’t seem to want to eat himself. I put on the TV even though I don’t think he can really understand it – sometimes he will talk back to the people on the TV. I also have cards I will give him, and if he is in the mood, he will play with them. When he is not in the mood for that he will want to finish his paperwork for his business, so I give him a red bag, and he will pull out papers and write on them gibberish. But to him – he is being productive.

He stays up around five hours, and then he is tired and wants to lie down. He wants me beside him and many times when I am not in the bedroom with him; he calls for me. He is in his hospital bed, and I will sit by him and hold hands, climb into bed with him or just lay on my bed beside him. We have a enormous TV on our wall that we watch. He will talk and chatter telling me things I cannot make out but I pretend to understand.

He is getting so skinny that it worries me. He is 5’10 when he was healthy he weighed 180 lbs. Now he is down to 140 as skinny as he is you would think that lifting his legs and helping him would be easier, but it isn’t his legs are like dead weight; I have hurt myself numerous times trying to help him. He just cannot move himself even when I help him into bed; I have to situate his body so that he isn’t crooked.

I have knots in my stomach – and I feel lost.  I have never had to be alone like this before.

I want my husband back…

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Today I hired the perfect care giver – she is spunky, loving and goes out of her way to give. I was a little concerned that I couldn’t afford her services Beautiful Momentsbut she is worth that and more.

Yesterday was Jayne’s first visit; she came for a 5 hours stint.  I went out to help my sister find an apartment and had an appointment to get some acupuncture therapy.

When I got home and opened the door I hear the sound of music – my husband laughing!

Jayne was sitting next to him and he was having a belly laugh, on top of that my house was clean.  My heart filled with true gratitude and joy.

To see my husband smiling and laughing is an amazing gift – So many beautiful moments with my husband so glad I quit.

Thank You God

 

 

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What a wonderful day we had. My brother came out from Tooele, and we put my husband in the car, so we could go for a drive. Since I have been giving my husband, a supplement that actually causes ketosis (Keto//OS) he has just become so animated and his memory is so much better.

Before I started giving him Keto OS, he was taking a turn for the worst. I was in tears most of the time – but the improvement is astonishing now he is walking with assistance, when we drove passed a park that his mom and he use to walk in he told us about it, he even said this has been a wonderful day! Just seeing him smiling when we were out for the drive made my heart sing.

Before we started giving him this supplement, he was not walking, very lethargic and was in that state you see with Dementia patients – it looked like he was sleeping with his eye’s open and out of it most of the time.

I am not being “pollyanna”  or pretending he is going to get better because of the supplement. My purpose for trying this is so he have a better quality of life as long as we have him here with us.

This product seems to be living up to my wish.

I will put the product link on my resource page

For me it is  about brain health but it also helps in weight loss. This is an amazing product…

Keto//OS

Brain Supplement

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