Molly’s Movement is a series of video’s about dementia that chronicles the life of a son and mother living with dementia.
I have been following the videos of Molly and Joey for a few months and it is heart breaking. Molly has Lewy body Dementia that is what my husband has but he also has Parkinson so his body is stiff and rigid. This documentary is well worth watching it will give you a glimpse into what happens when a loved one suffers with Lewy Body Dementia.
One of his favorite breakfasts use to be oatmeal, not anymore…
Something has happened that is a little strange. My husband used to love oatmeal in the morning with nuts, raisins, dates, etc. One day I fed him oatmeal just like he loved it and when I turned around he was spitting out all the hard pieces right on the table. Now this guy is Mr. polite society, so he would have been horrified to know he had done this. Currently I make his oatmeal with butter, cream, maple syrup. The things he would have avoided in the past. It gives him extra calories since he is so skinny now and it is delicious… Problem solved.
This morning I to cut up onions, peppers, potatoes into little pieces and cook them on the stove until they were really nice and crisp. Then I cooked eggs over easy – put all the delicious at the bottoms of the plate and then lay the eggs on top. It is scrumptious. This is something we have enjoyed for breakfast for a longtime.
Once again today I went to feed him, and he started spitting out the crispy pieces, he hated them. He would only eat the eggs.
From now on oatmeal and everything else will be smooth, I will make sure there are not small chunks of anything in his food. It’s just kind of odd how this illness has affected his perception.
Seeing this aggressive behavior is frightening, I hope it isn’t a sign of things to come.
What a tough day – it started with my husband sleeping in until 1:30 when I tried to wake him up no response. We took his vitals, which were OK I finally woke him up so the CNA Cynthia could give him a shower he lashed out. Grabbed my arms – wouldn’t let go, when I got away from him, he grabbed at the Cynthia’s face! He has never done that before, he was upset because he thought I had not been at the house taking care of him.
Then when we brushed his teeth and had him rinse he wouldn’t spit out the mouth full of water he was being stubborn; we were worried he may choke on it. I had Cynthia go home and worked for three hours trying to get him to spit it out. Finally when I stuck my fingers in his mouth he spit it . Just the worry and stress of that simple thing wore me out.
We left him in bed today because I didn’t know how he was going to react while he was up. I hate keeping him in bed, now he is fine and I am feeding him grapes.
I have seen some really aggressive behavior I just hope it isn’t something that will continue. I know with Alzheimer’s people do get aggressive and mean. In fact, my grandfather was so mean that my grandma had to put him in a rest home. It was a good one, and she was there every day until he died feeding him lunch and dinner. She loved him and was so dedicated to being there – she was a great role mode. I just wish I understood what she was going through I would have been a much better granddaughter.